Butterfly Thyroid Cancer Trust is the first national charity in the UK dedicated solely to the support of patients with thyroid cancer. To those who seek it, they can offer information, support and encouragement (but not medical advice). They provide a helpline, as well as a website full of information, news, resources and links to other organisations. Being diagnosed with cancer can be both a frightening and isolating experience, especially when your cancer is rare, but talking to someone who has experienced similar surgery and the same treatment regime can help. This can be particularly helpful during periods of hypothyroidism (living without any thyroid hormone) and treatment in isolation, both necessary elements in the treatment of thyroid cancer.
By liaising with the medical profession, Butterfly aim to promote a wider knowledge of the disease and to assist the improvement of the patient’s experience with thyroid cancer. Butterfly works closely alongside, and with the full support of, the Multi-Disciplinary Thyroid Cancer Care Team in Newcastle and many other leading centres including the Royal Marsden to ensure that the information on their website is accurate, relevant and up-to-date.
Butterfly was founded by a patient in Newcastle upon Tyne following her own diagnosis with thyroid cancer in June 2000. Everyone involved in the charity works on a voluntary basis and has either had the disease or been closely involved in the care and support of someone who has.
The CEO was the first person in the UK to receive an MBE from Her Majesty the Queen for services to Thyroid Cancer in 2014.
Please visit their website for more information.